Pain, pain go away...

So he cried all through supper...we watched some Adam Sandler movies and he got stiff and when he went to the washroom he hurt so bad that he started crying...hard to deal with...I know his pain is real and frustrating and his inability to even go to the washroom alone because he is in too much pain to walk and he can't even lower himself or raise himself--very hard. BUT I gave him an advil and when he heard Marilyn and Richard were outside, we all went out. He went in his wheelchair and looked for spiders with us and we found the wild blackberry patch in our yard and had a feast!! Then we found our plum tree and ate some more! Yum! So nice to see him outside enjoying himself. I try and stay in the moment and NOT think about how well he was doing before Shawnda arrived and he played ball and hurt himself--he was going to the washroom alone and walking alone--he was doing SO well!! Need to go there again!

Just wanted to highlight the funny comedys we watched to lighten us all up and the time we spent outside with friends--all in all a good day even with the 2 hr supper episode--and part of that is because I want him to eat halibut and he doesn't like it.

Frustrations!!

I sigh alot...you see, I ALWAYS feel so guilty when he has a setback as I ALLOWED whatever it was to occur. The most recent being a ballgame with the cosmic catch ball that Tristan and Brenna brought with them. Cory had been doing SO WELL for 10 days on his Maker's Diet and was so happy and then he played this and he has now been in BRUTAL pain for 2 wks plus 2 days and can no longer walk, hurts to roll over, hurts to move, hurts for me to pick him up...HOW can he be in SO MUCH PAIN!!! This is JUST so unfair!! He cries almost every night, wakes up a few times each night... his crying and suffering, albeit hard for him, is EQUALLY hard for me as I want so much to bear it all for him. I PRAY for wisdom and peace and for healing for Cory. I have Marilyn and Richard here to help us get ready for our journey and I don't plan on stopping till I have cured Cory!!