Oct 10th

Cory's spirits are good today. I put him down to just 1 prednisone after seeing a disturbing show on Marketplace about prescription drugs and deaths. He is on the FG products still and I added the zeolite and 92 mineral blend one as well on saturday after meeting Marian on friday.

More Pain

Cory has more pain in his neck and shoulders and collar bone tonight. My heart just aches for him. Truly does. Hmmm...well, he just came in and said his chest pain seems to be less as does his leg pain. He says that his neck etc. hurt because he sat up without support yesterday. I am so glad he just walked in as I feel happier knowing that. I am PRAYING to GOD that he allows this stuff to work for Cory!! That I can HEAL Cory in HIS glorious name and move FORWARD!!! Yes!! AMEN!!

Oct. 4th

I have been keeping track on live strong.com and Cory has about 1700 cal. each day. I am not going to repeat all the meals here unless it is new or I see a new trend of pain. Today he had his SEA come today and he had a good time and even went outside for a walk. Nice to see him happy. Did have to get up with him around midnight last night as he had a sharp, pinching pain on the right side of his chest. So I stretched out his chest and he said it felt better. I gave him a massage and another advil...same as the night before. He still weighs 51.5lbs. Lets hear 60!!!

Got the FrequenSea today and the Pulse 8 so we are both starting on that and will report our findings!!

Cory had bad D today. 6 times really watery. Hmmm....good to note. His pain at 5pm is pretty good and he weighs 50.5lbs

Oct. 1--Lots of Pain

Cory's back and buttocks are quite painful today. I did get him outside and pushed him on the swing but ended up carrying him in side in tears as it was just too bad. Poor fella. Sigh.
B-hemp smoothie and a raspberry, banana smoothie
Sn-green smoothie and sourdough and butter
L-barley soup
Sn-pickles, 2 almond cookies
S-salad and dressing
Sn-almond mocha smoothie
Total 1700 calories as per www.livestrong.com
iron x2 cax2 probiotic and 1.5 prednisone and 1 advil and an advil last night late as he was up until 1am crying bad and shaking in pain.

We listed the house today with Clinton Miller. Nothing has sold on this road and all the other listings are more, so we will see what happens. Then we will go rent somewhere and I will look into this Legal Shield business.

Sept. 30th, 2011

Cory-feeling more punk than the last few weeks. I think it is the little treats I have given him and perhaps the bread. He didn't want to go swimming, yet he was so excited to go a few days ago. It is 9:15pm and he is whining and shaking in pain. He is 51 lbs and has not gained any weight in a year, but lost from the 57 lbs. he was at last December after the tube feeding. I am going to post here daily so that I can monitor what he eats and any changes. I will also take a current photo tomorrow.

B-strawberries and honey
S-hemp smoothie with bananas, nectarines and strawberries
L-sourdough bread and butter
S-green smoothie
S-almond milk, honey and carob powder
S-salad
S-1 pear
1235 calories
1.5 prednisone
12.5ml iron x2
calcium supp.x2
OK, seriously NOT enough calories!! He needs 4000!!

Low energy and just played minecraft most of the day. He did watch 2 pokemon shows and read some stories. I ordered the Forevergreen stuff for him for $700 so we will see how that goes.

Zig Ziglar

When you laugh at yourself the world laughs with you

Nothing, in my experience, has a stronger impact on individuals than hearing stories of how it was then, how it is now, and what happened in between. Those stories give hope to the hopeless. They say, “See, life can be hard but it will get better – if you do!” If you can’t see the light at the end of the tunnel you can’t see where to go. Stories of hope inspire people to find their way out of bad situations. Like the parables in the Bible – they give direction.

I’m sure I could have gone my entire speaking career without telling anyone that I don’t gamble or drink and why. I could have left out the truth about how many different jobs I’ve had in the course of my sales career; how many times I relocated my family in search of the pot-of-gold sales job. I could have skipped telling how my wife has cried with relief when I came with cash and we could pay bills and buy groceries. But I could never have convinced you that you can improve your attitude and your circumstances if I couldn’t show you how I’d done it myself.

I was young, vigorous and healthy when all of the circumstances mentioned above happened. Now I have challenges that I may never entirely overcome, and I want you to know that having the right outlook, realistic expectations, and constant hope for something better will serve you and the people you love so much better than resigned acceptance of the status quo. Life is to be lived transparently, excitedly, with eager anticipation of the good things that still lie ahead, in spite of our circumstances.

Keeping the faith

Romans 8:28, “We know that all things work together for good to them that love God, to them who are called according to his purpose” (KJV), is the verse that allows me to know that God will use this season of my life, difficult though it may be, for His glory and my ultimate benefit.

Remicaid in action

These are all stories from people who have tried Remicaid that I found posted on the net: I had the same reaction when I was on Remicade. I just thought it was the benedryl they gave me before the infusion. I developed Lupus on the drug and had to be taken off. That is when my red and white blood count to a dive to a very dangerous level. The day after I had a bone marrow biopsy I quit taking ALL drugs. At the time I was on, Remicade, Naprosyn, Arava, Prednisone, Darvocet, Nexium, Ambian and Imitrex.

I just had an infusion today. About an hour after I made my post my legs started to hurt really bad 91/2 out of ten pain scale and they are hot to the touch...now it seems to be moving up my back and down my right arm. I'm getting weakness in those areas too. I don't know whether I should call the hospital or not but I took some tylenol and some benedryl and nothing seems to be helping. the pain is making me dizzy and naseated.

Well I ended up going to the emergency room right after I made my post. To say the least I won't be getting anymore infusions. The ER doctor said that he didn't know why my body would react that way but he didn't think it would be a good idea to resume the infusions. I tried explaining what happened to my Rheumatologist today but he blew me off and concluded that I have fibromyalgia (spelling?) and wanted me to continue the Remicade. He said that he thought my reactions were a coincidence and weren't from the medication but from the Fibro. He said he has 100 people on the medication and he has never heard of the reactions I was describing. I told him I wasn't going to do the infusions anymore because it just wasn't worth it for myself. I know for a fact that the migrane, hot and cold flashes, dizziness, being light-headed,blurry vision, weakness in limbs, stiff neck, swollen throat and extreme pain in my muscles in the legs and arm leaving them hot to the touch was all due to the infusion. My first infusion had a few side effects that were mainly just annoying but this time was even worse and quite frankly I don't want to test the third time. I know this drug is amazing for a lot of people. I'm grateful that its out there for those that can benefit. Is anyone on or familiar with Humira?

I need to know if anyone at all has had a side effect of numbness from their remicade. My husband was receiving treatements for Crohn's and now the hand that he was receiving the IV in is injured. He has nerve damage and he was experiencing numbness after his second treatment. I really need to find out if anyone else has experienced this, the doctors can't help us.

Hi Carolyn P - I'll send you an email about my experience with Remicade but loss of feeling and nerve problems are definitely associated with Remicade.


BentFingers posted 05-08-2004 21:49 ET (US)
Hi Srcreaky :-) Just read your posting about remicade. I don't think the side effects get better, just worse - and sometimes with no warning. The day after I had my 7th remicade infusion I work up and couldn't walk. I literally fell back in bed because of the numbness in one leg. In the ER room at the local hospital the numbness continued up my other leg until both legs were numb up to my waist.

The local ER doc didn't know what to do with my so he sent me on to the Cleveland Clinic. Once there, I was admitted by the doc who did my neck and back surgery since there were thinking it was another disc that needed to be fused. He put me on steroids, IV, first thing.

The MRI (total body, with and without contrast) took over 2 hours with just lying still and didn't show anything with the spinal cord. I had more blood work, more doctors and more opinions. They cancelled my back surgery because there was not enough to support doing it.

Six days later, just after the neurologist did a spinal tap which came out negative, it was decided that the remicade's side effect was to blame. That was 2 years ago and I STILL have the numbness in one leg causing me to lose my balance a lot and forcing me to use a cane full time as well as lean on someone when walking.

Yes, I am bitter because I was told only a very small percentage of people have a problem with side effects. Remicade did this to me.

Be careful, VERY careful when using remicade.

Remicaid

HEALTH CANADA ADVISORY

August 20, 2009

Health Canada issued an advisory concerning the use of Remicade® (infliximab). To read the full Health Canada Advisory, visit Health Canada's web site at www.hc-sc.gc.ca.

A previous advisory was issued on July 24, 2006, and can be accessed at www.hc-sc.gc.ca.

Some children and young adults with Crohn's disease who were receiving infliximab have developed hepatosplenic T-cell lymphoma, a rare type of cancer that is often fatal. Talk to your doctor if you have any concerns.

Immune system disorders: Some people who take this medication have developed lupus-like syndrome, an autoimmune disease (a condition where the body is attacked by its own immune system). Symptoms of lupus-like syndrome include chest pain, joint pain, difficulty breathing, and a skin rash (usually on the cheeks and arms) that is sensitive to the sun. If you develop these symptoms, contact your doctor as soon as possible.

Infections: This medication can increase the risk of developing an infection, including serious infections such as sepsis, pneumonia, and tuberculosis. Before starting infliximab treatment, your doctor may test to see if you have tuberculosis. If you notice signs of an infection such as fever, chills, pain, swelling, or pus, contact your doctor as soon as possible. This medication should also not be started while you have an active infection. While you are taking infliximab, your doctor will monitor you for signs of infection.

Children: The safety and effectiveness of this medication have not been established for children under 9 years old. It can be used to treat children 9 years and older who have moderate-to-severe Crohn's disease. The safety and effectiveness of this medication for treating other conditions in children 9 years and older have not been established.

Not the Way to go!

Gary Sage has seen first hand the impact juvenile arthritis can have on a young child. Ten years ago, his then five-year-old son, Geoff, was diagnosed with juvenile arthritis. Like many other Canadians, the Sage family was not aware that arthritis could affect people at such a young age. At first, they thought their son was having ‘growing pains’. However, after Geoff continued to complain about hurting bones and had difficulty sleeping, his family pursued the proper diagnosis.
It took two months, many trips to the hospital and a series of tests before Geoff, who is now 15, was diagnosed with juvenile arthritis. Since his diagnosis, he has endured more than 200 hospital visits and is currently waiting to have his second hip-replacement surgery.
“It’s really difficult to explain how this disease has impacted Geoff’s life because everything looks fine on the outside,” explains Gary. “Very few understand that arthritis can affect young people. The disease has taken away my son’s ability to live life like most 15-year-old kids. Geoff cannot ride a bike, play football or even put on his own socks most days. I am hopeful that one day, with commitment and dedication towards research and finding a cure, children with juvenile arthritis will be able to have access to the best treatments and will have a chance at experiencing remission.”

Natural treatment for RA

Altough is so often stated that there is no cure for RA, this statement is nonsense. It is possible to heal every disease, but not every person, because not every person believes and support one´s own healing.

The goals of natural treatment of Rheumatoid Arthtritis are to:

Relieve pain and regenerate nerves
Neutralize acidity in the body
Heal inflammation and kill the pathogens which cause it. Inflammation does not come from the blue sky - they are always certain bacterias or viruses involved, because immune system is not defending the body from them.
Improve immune system and restore itś primary function
improve health of kidneys
balance hormones (especially thyroid, parathyroid, sexual hormones, hormones of adrenal glands)
regenerate blood
Slow down joint damage and gradually restore the health of the joints
.

The worst problem is - when people BELIEVE that there is no cure for their illness. Such belief attracts further problems - as fears, not accepting healing (attitude "there is no cure for it, why should I try?") and is the best path for allowing illness to progress. The truth is - what you believe that truth is. Every illness is just one challenge more - WHICH IS ALWAYS POSSIBLE TO OVERCOME.

Healing Bones

Bones in our body are very much alive, and in the process of constant change, so they can be easier healed then we are aware of.

In the process of healing the bones, we heal them at the same way we heel cartilage (because cartilage is basic material for the bones) plus we need to balance quantity of mineral salts which harden the bones ( especially calcium and phosporus), and establish maximum of balance in the other parts of the body connected with health of the bones: endocrine balance, kidneys and liver, blood circulation etc.

In the process of healing the bones, healing or balancing the parathyroid glands is always necessary, as well as to balance whole endocrine system. Parathyroid glands (as part of thyroid gland in the throat) are directly influencing health of the bones and teeth (they balance level of Calcium and Phosphor in the body and parathyroid hormones influence production of vitamin D which is important for mineralization of bones. Health of kidneys and liver are also very important, because within both of them vitamin D transforms into bio-active form which body can use - for mineralization of the bones.

Sexual hormones are necessary for building the bones (estrogen, progesterone, testosterone). Diabetes is destroyer of bones (endocrine gland pancreas). Stress is killer of the bones, because during the stress body spends much more minerals then usual - which are stored - in the bones (connection with adrenal glands and pituitary gland).

What to Eat??

Vegetable juices especially a mixture of carrot, beet and cucumber is very beneficial. Green salad with lemon juice, cooked vegetables like pumpkin, spices like ginger, coriander, asafetida, and turmeric all contribute to the well being of the joints.

Fruits like apples, oranges, grapes, papaya should be taken liberally.

Vit E

Vitamin E is helpful not only in preventing breakdown of cartilage but also in generating the components necessary for the manufacture of cartilage. Collagen, which is an important constituent of cartilage, requires the presence of vitamin C. In some individuals, tomatoes, potatoes and peppers can prevent collagen repair, so the diet needs to be suitably altered to exclude these. It has been found that allergic foods can trigger joint pain, so the first step is to identify these foods and eliminate them from your diet. Be sure to go low on tea, sugar, yogurt, chocolate and tempting spicy and fried foods. A radical change in your lifestyle can do wonders for arthritis.

Natural Hygiene

NH teaches that our bodies are always self-healing & always do the right thing when we have diseases
Our bodies always do the right thing. We are passengers on the train of life, not the conductors. Since life began on earth, our God within, our inherent intelligence within each cell of our bodies, has learned to make the optimum adaptation and resolution, to any problem to which our bodies are subjected.

Whatever stresses our bodies presently have, our ancestors have successfully learned how to successfully cope with such, previously. It is already built into our genes, our chromosomes and our DNA.

Our inherent intelligence, if it chooses to produce disease, it does so to protect us. This disease, or whatever our pathology or symptomatology, helps us survive, despite our self-destructive lifestyle, thinking and spirituality. Our disease is for our protective benefit.

Our disease will spontaneously heal, when the cause and need for our inherent intelligence, our God within, to produce disease, no longer exists.


Natural Hygiene teaches that every pathology and physiological dysfunction produces a concomitant symptomatology in all human beings. Only Natural Hygiene has had the insight to write about this inherent self-healing mechanism.

This means, that your inherent intelligence, your God within, is always talking to you. If you listen to it and obey it, you will always have good health. So whenever you are ill, your inherent intelligence produces symptoms upon which you should concentrate, meditate on, pay attention to and feel, until you are asymptomatic, i.e., until your symptoms completely and permanently disappear. If and when you will do this, your illness and the cause of your illness, will always help heal completely and permanently.


Avoid treating your symptoms to heal, remove the cause
To heal your health problems, you must remove its cause. To just treat your symptoms, does not permanently heal yourself.

In treating your symptoms, you are just treating the effects, not the cause. Your symptoms exist for your protective benefit. Your symptoms are the healing and detoxifying reaction of your inherent intelligence, your God within. Your symptoms are always controlled by your inherent intelligence. This is why your symptoms should never be destroyed, interfered with and suppressed.

The destruction, interference, and suppression of your symptoms, prevents these inherent, protective bodily defenses from healing yourself. If your inherent intelligence cannot heal your distresses, nothing and nobody else can. No destructive, interfering and suppressive therapy of any kind can heal you, but only your inherent intelligence can heal.

Causes of Arthritis

Arthritis is a "disease" caused principally by impaired metabolism and toxemia (poisons in the blood and tissues).

Arthritis is inflammation of the joints, that occurs when toxins and irritants enter the joints. Arthritis is an acid condition that results from incorrect dietary habits and causes destruction of the cartilage and bones. Formation of calcium urates in the joints, results in pain and inflammation and eventual fusion of the joint, if the disease is allowed to progress.

Arthritis is caused by self-destructive health habits, including incorrect diet, poor food combinations, lack of physiological rest and sleep, lack of proper exercise, lack of fresh air and sunshine, smoking, consumption of alcohol and coffee, emotional intemperance, use of drugs, pills and other factors that cause nutritional impairment, intestinal poisoning and chronic toxemia. A return to a more healthful lifestyle, will enable your body to correct your arthritis.

We placed her on a water fast with feeling meditation, followed by a correct diet. She fully recovered. She returned to school teaching and functioned very satisfactorily. We had been in contact with her for 20 years thereafter. She was still teaching school and she remained symptom free of her arthritis.

We placed him on a water fast with feeling meditation followed by a correct diet. He fully recovered his good health. He was able to bend his fingers as far as is normal without pain. Also, the pain in his neck and back disappeared. He returned to his trial attorney profession and functioned very satisfactorily as such.

Macrobiotics

Through macrobiotics I learned fascinating facts about my body, its organs, systems, and functions. I knew I had kidneys, but had never given them a thought until now. I learned how these small yet vital organs are connected to the health of my bones and joints. Eureka! This was the answer. My dietary habits had depleted the minerals in my bones and the energy in my kidneys. The macrobiotic diet provided the high-mineral foods to revitalize my kidneys. Its low fat foods allowed my body to eliminate years of accumulation, creating a greater flow of blood and energy through my entire body.

Within one week my pain had totally gone. My energy increased. I breathed easier, slept more soundly and felt more hope and inner power than ever before. I got the message loud and clear. Macrobiotics was my solution. After twelve years, I continue practicing the macrobiotic way of life and continue to be free of arthritis. I am deeply grateful to each of my macrobiotic teachers for sharing their profound knowledge and wisdom and, with tireless dedication, for creating books, classes and institutes in which people learn the macrobiotic way of life.