I suppose this is why his back now hurts, he overdid it in the pool--found this online:
When the joints are actively inflamed, vigorous activity should be avoided because of the danger of intensifying joint inflammation or causing traumatic injury to structures weakened by inflammation. On the other hand, patients should be urged to maintain a modest level of activity to prevent joint laxity and muscular atrophy. Splinting of acutely inflamed joints, particularly at night and the use of walking aids (canes, walkers) are all effective means of reducing stress on specific joints. A consultation with a physical and an occupational therapist is recommended early in the course.
That frustrates me reading that as NO ONE HAS HELPED US EVEN AFTER THE DIAGNOSIS TO TELL US THIS!!!!! UGGGGHHHH!!!! OK, feel better...Cory had ANOTHER bad night--crying to sleep, had a tylenol and 1/2 advil. Cried and cried...all his same pains still hurting. Even went to Leona's to get whisky...
He woke up and had mild headache. We had dentist appt. at 9;15 to see if headaches were from tooth. NOPE. She said that it is coming in just fine and his headache sounds like a migraine but usually not at that young age. So, after being mistreated by her helper, we left and after a stop at Buckshot BOoks, we went home and they played with their new gogo guys they want to collect. I prepared for the trip to Dr. McCollisters.
Got there and reviewed everything and JUST as we were to go, the Dr. pulled Cory's chair away from him and Cory went to sit back down on it and fell on the hard cement floor on his sacrum....the MOST painful spot he has. I was dumbfounded and shocked and ABSOLUTELY sick to my stomach at what just happened. His arm lay limp so I know that was implicated in the fall. The Dr. has NO idea how much this hurt him.
I carried him out crying and put him in the back of the van, crying still...I am sick...we got home and I was happy to see him when he actually could walk again and got in better spirits. He could move his arm, but is still sore. I had my planned call with Tammy Resch and so I shared with her. She is empathetic as she has recently lost her SIL and has a 5yr old niece she is absolutely crazy about and cares so much for her well being. I joked with Kevin that perhaps it was God's way of moving his pelvis in place like the PT said yesterday--only GODSPEED!! He liked that thought--I do too!
We started the sulfa. drug tonight--sick about that too...1-3 mos. to show that it is working. Ironically with all of this, today (so far as it is 10:20 now) is the 1st day I have not given advil every 6 hrs!!! Poor guy!
5T Chia seeds for B
smoothie
fish oilx2
cod liver oil
borage oil
Increasing iron from 10ml to 120ml as per Dr. McCollister
chili for supper with goat cheese
lotsa mandarin oranges
veggie juice
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