It is friday at 9:33am...here is a recount of yesterday. No improvement...he had usual breakfast, some cheese, millet/lentil soup for lunch, rice and VJ for supper, VJ for snack prior and green smoothie prior and more cheese. 2 t fish oil, probiotic, NO SULFA.as we took him off for day due to stress of potential TMJ issue. 40 Ml iron as we raise it slowly to 120ml. Advil at 10am, then 4pm, then 8pm then 10pm then 5am. All half doses that is why some are doubled up.
Overall, his day was really good--but I have to remember he is living on advil now and that takes all pain away--but now he has diarrhea again...this could get crazy. He raced cars with Kyle, he played farmville and poptropica. He read to Kara. BUT , come bedtime, the pain gets crazy and he cries and cries. I was up till midnight with him then slept till 2pm then up at 5am. Then slept 7-9am.
He says the pain is in his jaw and head a little right now and that is all that is real bad.
Almost midnight and he is crying out owie owie again. I hear Kevin going now. He played well all day with rests doing Farmville or watching tv. Playing with his new RC cars from Kelly and Jane. I hear him say his head is real bad. He had advil at 10 am then 4pm and then 8pm and a gravol. Had a nightmare/nightsweat. Was screaming out. Had 90ml iron today...2 t fishoil, had usual breakfast, cheese, goat yogurt for lunch, millet soup, quinoa and sweet potato for supper with brocolli and goat cheese. One VJ. Had 1 sulfa today. Talked to Shelagh and she mentioned maybe being off sulfa while doing PT would be better...good point...but we don't know. He needs to gain weight so bad. Had diarrhea again today for the 3rd day--is it the advil???
New back pain due to fall--now he can't stand up straight sometimes...he says hurts further up. Wrist and forearm still sore from fall. Saying owie still....
Overall his day was fairly good. Nights are crazy bad!!!! BAd, Bad,Bad.
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