slept through the night

After midnight, Cory slept through the night. He had some computer time as he had such an irritating cough that would not allow him to sleep and it hurt his back and buttock pain bad. He was in tears. I was happy to see him up walking this morning. BUT the energy and good spirits only lasted until 11:30 when he tried to get up after playing lego on his bed with his brother. The pain was bad. I massaged him. He had to go to the washroom...1st time he had diarrhea again since July. But no more today--he used to go 20x/day so I will just see where this goes. I started goats yogurt and cheese with him yesterday. He also had oatmeal and dates for breakfast both days, soup for lunch both days, and rice noodles and sauce both days and a veggie juice. We are about to put him on the sulpha. drug but I found a study here that shows an alternative and am trying to find out of a local practitioner. It is now 2:30 and he is watching Bugs Bunny with the crew after resting in his room. He has started making all sorts of funny sounds lately and am working on trying to get him to watch that. He shakes his leg often due to the pain.
2pm had diarrhea again--hmm..has not done this since July. Lying and playing lego now at 4pm with Kyle while I make pot roast for supper. Trying to keep it all together...

No more diarrhea today. Had some of my pot roast with yam, potatos, and carrots for supper. His sacroillic pain was just too bad to eat much so i fed him. Kevin and I had a serious talk about him with his coughing etc. as lungs, heart and breathing can all be affected by RA and specifically AS. I am nauseous yes, I am angry yes--at so many doctors that never took us seriously at the start. Here is an excerpt from an article I read today: "Move your hands from the top of your pelvis at your sides around to your back where you will feel a bump just to the side of your spine. That's the sacroiliac joint, where your pelvic bones attach to your spine. If it hurts to touch that spot and when you bend forward or backward, you probably have sacroiliitis." OK--the major complaint Cory had was that the 'bony spot' in his back hurt REAL bad to touch--DUH! Had any doctor shown any brains at the start, we could have really gotten to this sooner. Instead, we were chased out of medical clinics saying there was nothing wrong with him and we were 'wasting THEIR time!'.

Anyway, I am working hard to make his QUALITY OF LIFE good. Very challenging when I am busy cooking, cleaning, with 2 other kids, my OWN self-esteem challenges, paying bills, doing taxes, organizing people to come help him, physio., etc. I have to REALLY die to self here. I really need to remember Matthew 11:28, 29, and Romans 12:9–21.

The most common things in your diet that will cause a problem are corn, wheat, soy, dairy, citrus and sugar. The top three worst offenders are pasteurized milk, soy and gluten (wheat and other grains).--Dr. Mercola